5251 Rathbun Rd.
Cazenovia, NY 13035
ph: 315-663-7738
fax: 315-637-8234
info
In 2007, the Willis family was confronted with a diagnosis of Duchenne Muscular Dystrophy (DMD) for their twin sons. Less than one year later, with the help of family and friends, the Two Smiles One Hope Foundation was created to aid funding for research to find a treatment or cure for this disease. While much has been learned about the cause and effects of DMD, a treatment has remained unobtainable. In recent years, through the tireless efforts of researchers around the world, a treatment for the disease has become not only plausible, but very possible. It is our hope that in the coming years the Jam will stand as a celebration for the solution that will save Nolan, Jack, and the tens of thousands of children that face and fight this disease everyday. You can help! By attending the Ski Caz Jam IV, your need to groove will help our need to fund the research that will unlock the cure.
Duchenne Muscular Dystrophy is the number one genetic killer of children worldwide. The disorder attaches itself to the "x" chromosone making boys it's primary target. It's onset occurs early in life, limiting the mobility and agility of the children it affects. It eventually robs ambulation by early teen years. The final stages of the disease cause respiratory and pulmonary distress and eventually failure. Life expectancy is rare past age 25.
For more information on Duchenne Muscular Dystrophy or Two Smiles One Hope please visit their website at www.twosmilesonehope.com
5251 Rathbun Rd.
Cazenovia, NY 13035
ph: 315-663-7738
fax: 315-637-8234
info